Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos – More Than Just Bendy

Ehlers-Danlos Syndrome Type 3/Hypermobility EDS (hEDS) is a life-long genetic disorder, which is caused by an abnormal mutation of an unknown gene. It causes a fault in the collagen, which is the glue that holds our bodies and organs together causing it to become weak and fragile affecting the whole body. Collagen is found in… Continue reading Ehlers Danlos – More Than Just Bendy

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Types of Pain EDS Causes Me

One of the most challenging things about having chronic pain is attempting to articulate exactly what hurts and what type of pain it is as there’s so much often at the same time. As I struggle to properly explain this out loud, I thought I would have a go at putting it all down in… Continue reading Types of Pain EDS Causes Me

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

My EDS Story

I haven’t written a blog post in over a year, I can’t really explain why as I’m not entirely sure myself but it’s 2020 now and I finally have the motivation to start blogging again.  Over the last few months I have been thinking about my life with EDS so far and thinking about how… Continue reading My EDS Story

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health, Travel

Travelling with Ehlers-Danlos

Ehlers-Danlos… the travel companion no one ever asked for or wanted, but as with all Chronic Pain conditions we’re all in this for the long haul and so even when we go holiday, EDS comes along too. I have recently returned from two weeks of travelling around the West Coast of America (with a 9… Continue reading Travelling with Ehlers-Danlos

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

hEDS – What Is It?

Ehlers-Danlos Syndrome Type 3/Hypermobility EDS (hEDS) is a life-long genetic disorder, which is caused by an abnormal mutation of an unknown gene. It causes a fault in the collagen, which is the glue that holds our bodies and organs together causing it to become weak and fragile affecting the whole body. Collagen is found in… Continue reading hEDS – What Is It?