Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, Lifestyle

Putting the Able in Disabled

It’s 6am and my alarm clock goes off, I open my eyes and feel the pain flood my body. I lift my head off my pillow and feel my heart rate start to climb rapidly. I give up, hit snooze and put my head back on my pillow for 10 minutes. My alarm goes off… Continue reading Putting the Able in Disabled

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Health Update

Happy New Year gang (can I still say that in the middle of February? No, I can't can I...) Well then, Happy February gang. I've sort of neglected this blog so far this year, as my brain has been filled with a ridiculous amount of other things, but I thought it was about time I… Continue reading Health Update

Chronic Pain, Disability, Ehlers-Danlos Syndrome, Lifestyle

2020 Round Up

2020… what a year!  I think I speak for us all when I say that at midnight on 31st December 2019, none of us could have even imagined how the year would turn out. Despite the country being in lockdown for the majority of 2020, my year has actually been surprisingly hectic, so I thought I… Continue reading 2020 Round Up

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Major Knee Surgery? Been there, done that…

A few weeks ago, I was talking to my very good friend (and knee twin) Deb, who is about to also undergo a Tibial Tubercle Transfer (along with other procedures) on her right knee, and she suggested that I should write a blog post with all my tips for surviving major knee surgery, so, here… Continue reading Major Knee Surgery? Been there, done that…

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

8 Week’s Post-Op; Is My Knee Healed?

To make up for the fact I never wrote a blog post about week 8 of recovery, I thought I would quickly write one to update everyone on how my 8-week X-Rays and follow up went this morning. Yes, you read that right… I am actually writing a blog post on the same day everything… Continue reading 8 Week’s Post-Op; Is My Knee Healed?

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Week 7 Post-Op

Sunday 1st November (Day 43) to Saturday 7th November (Day 49) This week has been absolutely mental, so much has happened and unfortunately, towards the end of this week I have had to focus all of my energy on reliving a lot of medical trauma, rather than my knee recovery. Safe to say, I am… Continue reading Week 7 Post-Op

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Weeks 4-6 Post-Op

Disclaimer: This post is part of a Surgery Recovery Diary and therefore there are some graphic photos included (including photos of needles). This week’s post is a 3 for 1, which means I am officially up to date with my recovery diary (no, I never thought it would happen either…). The last 3 weeks have… Continue reading Weeks 4-6 Post-Op

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Weeks 2 and 3 Post-Op

Disclaimer: This post is part of a Surgery Recovery Diary and therefore there are some graphic photos included. Week 2 Post-Op Sunday 27th September (Day 8) to Saturday 3rd October (Day 14) Week 2 of recovery was spent becoming a little bit more self-sufficient (I managed to shower with minimal help, sit at my dressing… Continue reading Weeks 2 and 3 Post-Op

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Day 1 Post-Op

Before I start this post I do need to warn you that is a graphic photo, so please keep scrolling past the first lot of photos if you are squeamish. After a night of dozing on and off I woke up around 6am to my lovely night-shift nurse Caroline bringing me my cocktail of pain… Continue reading Day 1 Post-Op

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Surgery Day – TTT, MPFL Reconstruction and Lateral Release

Two weeks post surgery and I am finally lucid enough (and now able to keep both eyes open) to concentrate on something other than watching Grey’s Anatomy so I figured I should probably update my blog with how surgery went and how recovery is going. I’ll work through the whole thing chronologically, post by post… Continue reading Surgery Day – TTT, MPFL Reconstruction and Lateral Release