Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – My Granny

Today marks 4 weeks since the start of this blog series and today’s post is written by someone extremely special to me, my Grandmother. I have always had an extremely close bond with my Granny. When I was little, I loved being treated to a meal out with my Granny because she would always let… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – My Granny

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – Akua

This week’s guest post is from one of my closest friends, Akua. Akua and I went to school together from the age of 15, and at 18 we were both boarders at school, so we spent a year living 2 bedrooms apart. This means that she has been around since the very beginning of my… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – Akua

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – Hannah

Today’s guest post is written by someone who means the absolute world to me, so allow me to introduce you to my best friend, Hannah. Hannah and I met almost 7 years ago when we moved into the same halls of residence at University and she has been by my side ever since. When I… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – Hannah

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – Ian

Today’s guest post is one I never thought would actually happen but I am going to preface it with a warning that if you read the last instalment that my mum wrote, the answers you are about to read are nothing that you are expecting but that’s brothers for you… Ian and I don’t really… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – Ian

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – A Series

There’s a common misconception that EDS only affects those who are actually suffering from it but that isn’t true. Because EDS is all encompassing, it has an impact on everyone around us. I decided to start a new series on my blog, exploring the different perspectives from people in my life. In this series, you… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – A Series

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

𝙺𝚗𝚎𝚎 𝚂𝚞𝚛𝚐𝚎𝚛𝚢 𝙳𝚒𝚊𝚛𝚢 – 𝚂𝚞𝚛𝚐𝚎𝚛𝚢 𝙸𝚜 𝙱𝚘𝚘𝚔𝚎𝚍!

Well, I wasn’t expecting to start a diary of my knee surgery quite so soon… Originally, I was only going to start this blog series once I was out of surgery but so much has happened since I was first told I needed an operation that I figured I may as well start this series… Continue reading 𝙺𝚗𝚎𝚎 𝚂𝚞𝚛𝚐𝚎𝚛𝚢 𝙳𝚒𝚊𝚛𝚢 – 𝚂𝚞𝚛𝚐𝚎𝚛𝚢 𝙸𝚜 𝙱𝚘𝚘𝚔𝚎𝚍!

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Behind The Smile…

One of the most common questions those of us with invisible illnesses get asked is,” What is the worst part of your condition?”. For me personally, I think a lot of people expect my answer to be the pain I am in all the time, and yes, the pain is honestly horrible and I wish… Continue reading Behind The Smile…

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Why I’m excited to have major knee surgery

When someone gets told that they need major surgery, requiring months/years of recovery, the last emotion you would expect them to have is excitement right?! But that is the exact emotion I feel when I think about the major knee surgery I am currently waiting for. I know it might sound really strange, I mean why would… Continue reading Why I’m excited to have major knee surgery

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos – More Than Just Bendy

Ehlers-Danlos Syndrome Type 3/Hypermobility EDS (hEDS) is a life-long genetic disorder, which is caused by an abnormal mutation of an unknown gene. It causes a fault in the collagen, which is the glue that holds our bodies and organs together causing it to become weak and fragile affecting the whole body. Collagen is found in… Continue reading Ehlers Danlos – More Than Just Bendy

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Types of Pain EDS Causes Me

One of the most challenging things about having chronic pain is attempting to articulate exactly what hurts and what type of pain it is as there’s so much often at the same time. As I struggle to properly explain this out loud, I thought I would have a go at putting it all down in… Continue reading Types of Pain EDS Causes Me