Chronic Pain, Ehlers-Danlos Syndrome, health

Week 1 Post-Op

Disclaimer: This post is part of a Surgery Recovery Diary and therefore there are some graphic photos included. As I am writing this post, I am actually 4 weeks post-op but let’s rewind time and go back to week 1 of recovery, shall we? Week 1 went by pretty quickly, mainly due to the fact… Continue reading Week 1 Post-Op

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Day 1 Post-Op

Before I start this post I do need to warn you that is a graphic photo, so please keep scrolling past the first lot of photos if you are squeamish. After a night of dozing on and off I woke up around 6am to my lovely night-shift nurse Caroline bringing me my cocktail of pain… Continue reading Day 1 Post-Op

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Surgery Day – TTT, MPFL Reconstruction and Lateral Release

Two weeks post surgery and I am finally lucid enough (and now able to keep both eyes open) to concentrate on something other than watching Grey’s Anatomy so I figured I should probably update my blog with how surgery went and how recovery is going. I’ll work through the whole thing chronologically, post by post… Continue reading Surgery Day – TTT, MPFL Reconstruction and Lateral Release

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – My Granny

Today marks 4 weeks since the start of this blog series and today’s post is written by someone extremely special to me, my Grandmother. I have always had an extremely close bond with my Granny. When I was little, I loved being treated to a meal out with my Granny because she would always let… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – My Granny

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – Akua

This week’s guest post is from one of my closest friends, Akua. Akua and I went to school together from the age of 15, and at 18 we were both boarders at school, so we spent a year living 2 bedrooms apart. This means that she has been around since the very beginning of my… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – Akua

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – Hannah

Today’s guest post is written by someone who means the absolute world to me, so allow me to introduce you to my best friend, Hannah. Hannah and I met almost 7 years ago when we moved into the same halls of residence at University and she has been by my side ever since. When I… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – Hannah

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – Ian

Today’s guest post is one I never thought would actually happen but I am going to preface it with a warning that if you read the last instalment that my mum wrote, the answers you are about to read are nothing that you are expecting but that’s brothers for you… Ian and I don’t really… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – Ian

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – A Series

There’s a common misconception that EDS only affects those who are actually suffering from it but that isn’t true. Because EDS is all encompassing, it has an impact on everyone around us. I decided to start a new series on my blog, exploring the different perspectives from people in my life. In this series, you… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – A Series

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Dear Doctors, Please Don’t Take Our Pain Medication Away…

You may have seen in the news this week (if you live in the UK and have Chronic Pain then you most probably would have) that new NICE guidelines have been introduced with regards to managing chronic pain. GPs are now being advised not to prescribe pain medication to those of us with conditions that… Continue reading Dear Doctors, Please Don’t Take Our Pain Medication Away…

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

𝙺𝚗𝚎𝚎 𝚂𝚞𝚛𝚐𝚎𝚛𝚢 𝙳𝚒𝚊𝚛𝚢 – 𝚂𝚞𝚛𝚐𝚎𝚛𝚢 𝙸𝚜 𝙱𝚘𝚘𝚔𝚎𝚍!

Well, I wasn’t expecting to start a diary of my knee surgery quite so soon… Originally, I was only going to start this blog series once I was out of surgery but so much has happened since I was first told I needed an operation that I figured I may as well start this series… Continue reading 𝙺𝚗𝚎𝚎 𝚂𝚞𝚛𝚐𝚎𝚛𝚢 𝙳𝚒𝚊𝚛𝚢 – 𝚂𝚞𝚛𝚐𝚎𝚛𝚢 𝙸𝚜 𝙱𝚘𝚘𝚔𝚎𝚍!