Since May is EDS awareness month, I thought I would write an open letter to those who don’t know or understand much about it. Dear friends, family and even strangers, below are some things that I want you to know and understand… I am scared, terrified in fact as I have no idea what the… Continue reading EDS Awareness Month – An Open Letter
Ehlers-Danlos Syndrome Type 3/Hypermobility EDS (hEDS) is a life-long genetic disorder, which is caused by an abnormal mutation of an unknown gene. It causes a fault in the collagen, which is the glue that holds our bodies and organs together causing it to become weak and fragile affecting the whole body. Collagen is found in… Continue reading hEDS – What Is It?
Dear 13-year-old Lauren, Tomorrow dad will take you to school. You will kiss him goodbye and tell him you love him and you’ll see him later. You’ll run into the common room to meet your friends and you’ll talk excitedly about the Christmas Feast that will take place that evening and how next year you… Continue reading A Letter to my Younger Self
There’s only one thing better than spending a Monday off work having brunch in the sunshine and that is eating brunch in the sunshine with one of your best and oldest friends. Monday was a bank holiday and so I took the opportunity to spend some much needed time catching up with Emma, one of… Continue reading A Bank Holiday Brunch Well Spent Brings a Week of Content
To state the obvious, I haven’t blogged in a week. I did have good intentions to but EDS clearly had other plans. I was diagnosed with EDS Type 3 in September 2013, a mere few weeks before I left to go to University and have pretty much buried my head in the sand since then.… Continue reading The New Normal
As I mentioned in my first blog post, I have four tonkinese cats (at the moment) so I thought I would introduce you to them. They are all completely different so I decided they deserve a post each and who better to start with than the man of the house, Merlot (yes all four of… Continue reading Meet Merlot (the cat, not the drink!)