Ehlers-Danlos Syndrome, health

EDS Awareness Month – An Open Letter

Since May is EDS awareness month, I thought I would write an open letter to those who don’t know or understand much about it. Dear friends, family and even strangers, below are some things that I want you to know and understand… I am scared, terrified in fact as I have no idea what the… Continue reading EDS Awareness Month – An Open Letter

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

hEDS – What Is It?

Ehlers-Danlos Syndrome Type 3/Hypermobility EDS (hEDS) is a life-long genetic disorder, which is caused by an abnormal mutation of an unknown gene. It causes a fault in the collagen, which is the glue that holds our bodies and organs together causing it to become weak and fragile affecting the whole body. Collagen is found in… Continue reading hEDS – What Is It?

Bereavement, Ehlers-Danlos Syndrome, Grief, Loss of a Parent

A Letter to my Younger Self

Dear 13-year-old Lauren, Tomorrow dad will take you to school. You will kiss him goodbye and tell him you love him and you’ll see him later. You’ll run into the common room to meet your friends and you’ll talk excitedly about the Christmas Feast that will take place that evening and how next year you… Continue reading A Letter to my Younger Self

Lifestyle

A Bank Holiday Brunch Well Spent Brings a Week of Content

There’s only one thing better than spending a Monday off work having brunch in the sunshine and that is eating brunch in the sunshine with one of your best and oldest friends. Monday was a bank holiday and so I took the opportunity to spend some much needed time catching up with Emma, one of… Continue reading A Bank Holiday Brunch Well Spent Brings a Week of Content