Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, Lifestyle

Putting the Able in Disabled

It’s 6am and my alarm clock goes off, I open my eyes and feel the pain flood my body. I lift my head off my pillow and feel my heart rate start to climb rapidly. I give up, hit snooze and put my head back on my pillow for 10 minutes. My alarm goes off… Continue reading Putting the Able in Disabled

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Weeks 4-6 Post-Op

Disclaimer: This post is part of a Surgery Recovery Diary and therefore there are some graphic photos included (including photos of needles). This week’s post is a 3 for 1, which means I am officially up to date with my recovery diary (no, I never thought it would happen either…). The last 3 weeks have… Continue reading Weeks 4-6 Post-Op

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Weeks 2 and 3 Post-Op

Disclaimer: This post is part of a Surgery Recovery Diary and therefore there are some graphic photos included. Week 2 Post-Op Sunday 27th September (Day 8) to Saturday 3rd October (Day 14) Week 2 of recovery was spent becoming a little bit more self-sufficient (I managed to shower with minimal help, sit at my dressing… Continue reading Weeks 2 and 3 Post-Op

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – My Granny

Today marks 4 weeks since the start of this blog series and today’s post is written by someone extremely special to me, my Grandmother. I have always had an extremely close bond with my Granny. When I was little, I loved being treated to a meal out with my Granny because she would always let… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – My Granny