Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Weeks 2 and 3 Post-Op

Disclaimer: This post is part of a Surgery Recovery Diary and therefore there are some graphic photos included. Week 2 Post-Op Sunday 27th September (Day 8) to Saturday 3rd October (Day 14) Week 2 of recovery was spent becoming a little bit more self-sufficient (I managed to shower with minimal help, sit at my dressing… Continue reading Weeks 2 and 3 Post-Op

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – Hannah

Today’s guest post is written by someone who means the absolute world to me, so allow me to introduce you to my best friend, Hannah. Hannah and I met almost 7 years ago when we moved into the same halls of residence at University and she has been by my side ever since. When I… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – Hannah

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

π™Ίπš—πšŽπšŽ πš‚πšžπš›πšπšŽπš›πš’ π™³πš’πšŠπš›πš’ – πš‚πšžπš›πšπšŽπš›πš’ π™Έπšœ π™±πš˜πš˜πš”πšŽπš!

Well, I wasn’t expecting to start a diary of my knee surgery quite so soon… Originally, I was only going to start this blog series once I was out of surgery but so much has happened since I was first told I needed an operation that I figured I may as well start this series… Continue reading π™Ίπš—πšŽπšŽ πš‚πšžπš›πšπšŽπš›πš’ π™³πš’πšŠπš›πš’ – πš‚πšžπš›πšπšŽπš›πš’ π™Έπšœ π™±πš˜πš˜πš”πšŽπš!

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Behind The Smile…

One of the most common questions those of us with invisible illnesses get asked is,” What is the worst part of your condition?”. For me personally, I think a lot of people expect my answer to be the pain I am in all the time, and yes, the pain is honestly horrible and I wish… Continue reading Behind The Smile…

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos – More Than Just Bendy

Ehlers-Danlos Syndrome Type 3/Hypermobility EDS (hEDS) is a life-long genetic disorder, which is caused by an abnormal mutation of an unknown gene. It causes a fault in the collagen, which is the glue that holds our bodies and organs together causing it to become weak and fragile affecting the whole body. Collagen is found in… Continue reading Ehlers Danlos – More Than Just Bendy

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

My EDS Story

I haven’t written a blog post in over a year, I can’t really explain why as I’m not entirely sure myself but it’s 2020 now and I finally have the motivation to start blogging again.  Over the last few months I have been thinking about my life with EDS so far and thinking about how… Continue reading My EDS Story

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health, Travel

Travelling with Ehlers-Danlos

Ehlers-Danlos… the travel companion no one ever asked for or wanted, but as with all Chronic Pain conditions we’re all in this for the long haul and so even when we go holiday, EDS comes along too. I have recently returned from two weeks of travelling around the West Coast of America (with a 9… Continue reading Travelling with Ehlers-Danlos

Diet, Ehlers-Danlos Syndrome, health

Diet and EDS – Is there a link?

In recent years, there have been numerous articles around the link between diet and pain. Now, I was always one of those people who disregarded this and thought it was a load of nonsense. β€œHow could what I eat possibly affect my pain levels?” However, a few months ago after a period of feeling ill… Continue reading Diet and EDS – Is there a link?

Disability Awareness, Ehlers-Danlos Syndrome, health

Not Every Disability is Visible…

All too often in the media nowadays you see articles about people who have been vilified for parking in a disabled bay when they don’t look β€œdisabled”.  Sometimes this is done by a note left on someone’s car windscreen, sometimes it’s verbal abuse upon getting out of the car and other times it is silent… Continue reading Not Every Disability is Visible…

Ehlers-Danlos Syndrome, health

20 things I have learnt from my disability

When I was first diagnosed with EDS, I never really thought that the very thing causing me so much pain could teach me some of the most important lessons I’ve learnt but nevertheless it has. After having EDS for 24 years now (you’re born with it, even if symptoms don’t show until later in life)… Continue reading 20 things I have learnt from my disability