Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – Hannah

Today’s guest post is written by someone who means the absolute world to me, so allow me to introduce you to my best friend, Hannah. Hannah and I met almost 7 years ago when we moved into the same halls of residence at University and she has been by my side ever since. When I… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – Hannah

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – A Series

There’s a common misconception that EDS only affects those who are actually suffering from it but that isn’t true. Because EDS is all encompassing, it has an impact on everyone around us. I decided to start a new series on my blog, exploring the different perspectives from people in my life. In this series, you… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – A Series

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

π™Ίπš—πšŽπšŽ πš‚πšžπš›πšπšŽπš›πš’ π™³πš’πšŠπš›πš’ – πš‚πšžπš›πšπšŽπš›πš’ π™Έπšœ π™±πš˜πš˜πš”πšŽπš!

Well, I wasn’t expecting to start a diary of my knee surgery quite so soon… Originally, I was only going to start this blog series once I was out of surgery but so much has happened since I was first told I needed an operation that I figured I may as well start this series… Continue reading π™Ίπš—πšŽπšŽ πš‚πšžπš›πšπšŽπš›πš’ π™³πš’πšŠπš›πš’ – πš‚πšžπš›πšπšŽπš›πš’ π™Έπšœ π™±πš˜πš˜πš”πšŽπš!

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Behind The Smile…

One of the most common questions those of us with invisible illnesses get asked is,” What is the worst part of your condition?”. For me personally, I think a lot of people expect my answer to be the pain I am in all the time, and yes, the pain is honestly horrible and I wish… Continue reading Behind The Smile…

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Why I’m excited to have major knee surgery

When someone gets told that they need major surgery, requiring months/years of recovery, the last emotion you would expect them to have is excitement right?! But that is the exact emotion I feel when I think about the major knee surgery I am currently waiting for. I know it might sound really strange, I mean why would… Continue reading Why I’m excited to have major knee surgery

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos – More Than Just Bendy

Ehlers-Danlos Syndrome Type 3/Hypermobility EDS (hEDS) is a life-long genetic disorder, which is caused by an abnormal mutation of an unknown gene. It causes a fault in the collagen, which is the glue that holds our bodies and organs together causing it to become weak and fragile affecting the whole body. Collagen is found in… Continue reading Ehlers Danlos – More Than Just Bendy

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Types of Pain EDS Causes Me

One of the most challenging things about having chronic pain is attempting to articulate exactly what hurts and what type of pain it is as there’s so much often at the same time. As I struggle to properly explain this out loud, I thought I would have a go at putting it all down in… Continue reading Types of Pain EDS Causes Me

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

My EDS Story

I haven’t written a blog post in over a year, I can’t really explain why as I’m not entirely sure myself but it’s 2020 now and I finally have the motivation to start blogging again.  Over the last few months I have been thinking about my life with EDS so far and thinking about how… Continue reading My EDS Story

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health, Travel

Travelling with Ehlers-Danlos

Ehlers-Danlos… the travel companion no one ever asked for or wanted, but as with all Chronic Pain conditions we’re all in this for the long haul and so even when we go holiday, EDS comes along too. I have recently returned from two weeks of travelling around the West Coast of America (with a 9… Continue reading Travelling with Ehlers-Danlos

Diet, Ehlers-Danlos Syndrome, health

Diet and EDS – Is there a link?

In recent years, there have been numerous articles around the link between diet and pain. Now, I was always one of those people who disregarded this and thought it was a load of nonsense. β€œHow could what I eat possibly affect my pain levels?” However, a few months ago after a period of feeling ill… Continue reading Diet and EDS – Is there a link?