Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Health Update

Happy New Year gang (can I still say that in the middle of February? No, I can't can I...) Well then, Happy February gang. I've sort of neglected this blog so far this year, as my brain has been filled with a ridiculous amount of other things, but I thought it was about time I… Continue reading Health Update

Chronic Pain, Disability, Ehlers-Danlos Syndrome, Lifestyle

2020 Round Up

2020… what a year!  I think I speak for us all when I say that at midnight on 31st December 2019, none of us could have even imagined how the year would turn out. Despite the country being in lockdown for the majority of 2020, my year has actually been surprisingly hectic, so I thought I… Continue reading 2020 Round Up

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Week 7 Post-Op

Sunday 1st November (Day 43) to Saturday 7th November (Day 49) This week has been absolutely mental, so much has happened and unfortunately, towards the end of this week I have had to focus all of my energy on reliving a lot of medical trauma, rather than my knee recovery. Safe to say, I am… Continue reading Week 7 Post-Op

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Weeks 2 and 3 Post-Op

Disclaimer: This post is part of a Surgery Recovery Diary and therefore there are some graphic photos included. Week 2 Post-Op Sunday 27th September (Day 8) to Saturday 3rd October (Day 14) Week 2 of recovery was spent becoming a little bit more self-sufficient (I managed to shower with minimal help, sit at my dressing… Continue reading Weeks 2 and 3 Post-Op

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Day 1 Post-Op

Before I start this post I do need to warn you that is a graphic photo, so please keep scrolling past the first lot of photos if you are squeamish. After a night of dozing on and off I woke up around 6am to my lovely night-shift nurse Caroline bringing me my cocktail of pain… Continue reading Day 1 Post-Op

Chronic Pain, Disability, Ehlers-Danlos Syndrome, health

Surgery Day – TTT, MPFL Reconstruction and Lateral Release

Two weeks post surgery and I am finally lucid enough (and now able to keep both eyes open) to concentrate on something other than watching Grey’s Anatomy so I figured I should probably update my blog with how surgery went and how recovery is going. I’ll work through the whole thing chronologically, post by post… Continue reading Surgery Day – TTT, MPFL Reconstruction and Lateral Release

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – My Granny

Today marks 4 weeks since the start of this blog series and today’s post is written by someone extremely special to me, my Grandmother. I have always had an extremely close bond with my Granny. When I was little, I loved being treated to a meal out with my Granny because she would always let… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – My Granny

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – Akua

This week’s guest post is from one of my closest friends, Akua. Akua and I went to school together from the age of 15, and at 18 we were both boarders at school, so we spent a year living 2 bedrooms apart. This means that she has been around since the very beginning of my… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – Akua

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – Hannah

Today’s guest post is written by someone who means the absolute world to me, so allow me to introduce you to my best friend, Hannah. Hannah and I met almost 7 years ago when we moved into the same halls of residence at University and she has been by my side ever since. When I… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – Hannah

Chronic Pain, Disability, Disability Awareness, Ehlers-Danlos Syndrome, health

Ehlers Danlos Syndrome From an Outsider’s Perspective – Ian

Today’s guest post is one I never thought would actually happen but I am going to preface it with a warning that if you read the last instalment that my mum wrote, the answers you are about to read are nothing that you are expecting but that’s brothers for you… Ian and I don’t really… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – Ian