Today’s guest post is one I never thought would actually happen but I am going to preface it with a warning that if you read the last instalment that my mum wrote, the answers you are about to read are nothing that you are expecting but that’s brothers for you… Ian and I don’t really… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – Ian
There’s a common misconception that EDS only affects those who are actually suffering from it but that isn’t true. Because EDS is all encompassing, it has an impact on everyone around us. I decided to start a new series on my blog, exploring the different perspectives from people in my life. In this series, you… Continue reading Ehlers Danlos Syndrome From an Outsider’s Perspective – A Series
Well, I wasn’t expecting to start a diary of my knee surgery quite so soon… Originally, I was only going to start this blog series once I was out of surgery but so much has happened since I was first told I needed an operation that I figured I may as well start this series… Continue reading 𝙺𝚗𝚎𝚎 𝚂𝚞𝚛𝚐𝚎𝚛𝚢 𝙳𝚒𝚊𝚛𝚢 – 𝚂𝚞𝚛𝚐𝚎𝚛𝚢 𝙸𝚜 𝙱𝚘𝚘𝚔𝚎𝚍!
When someone gets told that they need major surgery, requiring months/years of recovery, the last emotion you would expect them to have is excitement right?! But that is the exact emotion I feel when I think about the major knee surgery I am currently waiting for. I know it might sound really strange, I mean why would… Continue reading Why I’m excited to have major knee surgery
Ehlers-Danlos Syndrome Type 3/Hypermobility EDS (hEDS) is a life-long genetic disorder, which is caused by an abnormal mutation of an unknown gene. It causes a fault in the collagen, which is the glue that holds our bodies and organs together causing it to become weak and fragile affecting the whole body. Collagen is found in… Continue reading Ehlers Danlos – More Than Just Bendy
One of the most challenging things about having chronic pain is attempting to articulate exactly what hurts and what type of pain it is as there’s so much often at the same time. As I struggle to properly explain this out loud, I thought I would have a go at putting it all down in… Continue reading Types of Pain EDS Causes Me
I haven’t written a blog post in over a year, I can’t really explain why as I’m not entirely sure myself but it’s 2020 now and I finally have the motivation to start blogging again. Over the last few months I have been thinking about my life with EDS so far and thinking about how… Continue reading My EDS Story
Ehlers-Danlos… the travel companion no one ever asked for or wanted, but as with all Chronic Pain conditions we’re all in this for the long haul and so even when we go holiday, EDS comes along too. I have recently returned from two weeks of travelling around the West Coast of America (with a 9… Continue reading Travelling with Ehlers-Danlos
In recent years, there have been numerous articles around the link between diet and pain. Now, I was always one of those people who disregarded this and thought it was a load of nonsense. “How could what I eat possibly affect my pain levels?” However, a few months ago after a period of feeling ill… Continue reading Diet and EDS – Is there a link?