Disclaimer: This post is part of a Surgery Recovery Diary and therefore there are some graphic photos included. Week 2 Post-Op Sunday 27th September (Day 8) to Saturday 3rd October (Day 14) Week 2 of recovery was spent becoming a little bit more self-sufficient (I managed to shower with minimal help, sit at my dressing… Continue reading Weeks 2 and 3 Post-Op
Well, I wasn’t expecting to start a diary of my knee surgery quite so soon… Originally, I was only going to start this blog series once I was out of surgery but so much has happened since I was first told I needed an operation that I figured I may as well start this series… Continue reading 𝙺𝚗𝚎𝚎 𝚂𝚞𝚛𝚐𝚎𝚛𝚢 𝙳𝚒𝚊𝚛𝚢 – 𝚂𝚞𝚛𝚐𝚎𝚛𝚢 𝙸𝚜 𝙱𝚘𝚘𝚔𝚎𝚍!
Ehlers-Danlos… the travel companion no one ever asked for or wanted, but as with all Chronic Pain conditions we’re all in this for the long haul and so even when we go holiday, EDS comes along too. I have recently returned from two weeks of travelling around the West Coast of America (with a 9… Continue reading Travelling with Ehlers-Danlos
In recent years, there have been numerous articles around the link between diet and pain. Now, I was always one of those people who disregarded this and thought it was a load of nonsense. “How could what I eat possibly affect my pain levels?” However, a few months ago after a period of feeling ill… Continue reading Diet and EDS – Is there a link?
All too often in the media nowadays you see articles about people who have been vilified for parking in a disabled bay when they don’t look “disabled”. Sometimes this is done by a note left on someone’s car windscreen, sometimes it’s verbal abuse upon getting out of the car and other times it is silent… Continue reading Not Every Disability is Visible…
When I was first diagnosed with EDS, I never really thought that the very thing causing me so much pain could teach me some of the most important lessons I’ve learnt but nevertheless it has. After having EDS for 24 years now (you’re born with it, even if symptoms don’t show until later in life)… Continue reading 20 things I have learnt from my disability
Since May is EDS awareness month, I thought I would write an open letter to those who don’t know or understand much about it. Dear friends, family and even strangers, below are some things that I want you to know and understand… I am scared, terrified in fact as I have no idea what the… Continue reading EDS Awareness Month – An Open Letter
Ehlers-Danlos Syndrome Type 3/Hypermobility EDS (hEDS) is a life-long genetic disorder, which is caused by an abnormal mutation of an unknown gene. It causes a fault in the collagen, which is the glue that holds our bodies and organs together causing it to become weak and fragile affecting the whole body. Collagen is found in… Continue reading hEDS – What Is It?
To state the obvious, I haven’t blogged in a week. I did have good intentions to but EDS clearly had other plans. I was diagnosed with EDS Type 3 in September 2013, a mere few weeks before I left to go to University and have pretty much buried my head in the sand since then.… Continue reading The New Normal